Resources

Tools, papers and conference material from our work in measurement science. Free to use, with a citation for each.

Anchors sort patients into change groupsConstructlinkageMeaningfulnessDiscrimination Paper, evidence record and talkAn evidential framework for evaluating anchor measures in meaningful change researchAdvances in Patient-Reported Outcomes, 2026. Open access. Presented at ISOQOL 2026, Prague.PaperEvidence recordWorked exampleISOQOL 2026 talkOpen
HandbookThe Psychometrician's HandbookA resource for action and consensus in clinical measurement, on its own site. With the launch poster from ISOQOL 2026, Prague.HandbookLaunch posterVisit itemandscale.com Launch poster (PDF)
CodeMiCT: minimal important change and threshold estimationR package on CRAN, based on our collaborative publications on meaningful change.Open Data visualisationThe people we loseFirst place in the ISOQOL Statistics Special Interest Group Data Visualisation Challenge, 2026. A short film about the patients a study loses, and how their absence can change the answer.FilmTrailerOpen Time 1One itemTime 2One itemAuxiliary variableAdjusted predictive modellingLongitudinal CFAMIC PublicationEstimating the minimal important change of single-item measures using the adjusted predictive modeling method or the longitudinal confirmatory factor analysis methodQuality of Life Research, 2026. Open accessOpen Simulated samplesPresent state biasNoneStrongCompared with the true MIC PublicationEffect of present state bias on minimal important change estimates: a simulation studyQuality of Life Research, 2024. Open accessOpen MICTime 1Time 2Latent change PublicationEstimating anchor-based minimal important change using longitudinal confirmatory factor analysisQuality of Life Research, 2024. Free to read via SharedItOpen Time 1Time 2Transition ratingTime 1 weightTime 2 weightEqual weights PublicationPresent state bias in transition ratings was accurately estimated in simulated and real dataJournal of Clinical Epidemiology, 2022. Open accessOpen Time 1Time 2PROM itemsPROM itemsTransition ratingSharedCommunality = reliability PublicationA confirmatory factor analysis approach was found to accurately estimate the reliability of transition ratingsJournal of Clinical Epidemiology, 2022. Open accessOpen ArticleHow reliable can a single item be?Piper Fromy. The idea behind the transition rating reliability paper, in plain language.Open Anchor AAnchor BAnchor CAnchor DOne weighted value PublicationTriangulation of multiple meaningful change thresholds for patient-reported outcome scoresQuality of Life Research, 2021Open Working rangeNo changeImprovementMDCMIC PublicationMinimal important change (MIC): a conceptual clarification and systematic review of MIC estimates of PROMIS measuresQuality of Life Research, 2021. Open accessOpen PopulationTreatmentEndpointIntercurrent eventsSummary measureEstimand PublicationWhat is an estimand & how does it relate to quantifying the effect of treatment on patient-reported quality of life outcomes in clinical trials?Journal of Patient-Reported Outcomes, 2020. Open accessOpen PosterBayesian borrowing for meaningful change in small samplesISOQOL 2026, Prague. Bayram M, Fromy P, Terluin B. Poster and one-page handout, PDF.PosterHandoutOpen PosterRethinking visualization of known-groups validityISOQOL 2026, Prague. Markiewicz N, Fromy P. PDF.Open Talkrmcorr vs MLCorr: a head-to-head contest for the within-person correlationOral session 109, ISOQOL 2026, Prague. Holveck M-J, with Fromy P. Slides, PDF.Open TalkA review of vignette-based methods for estimating meaningful score differencesOral presentation, ISOQOL 2026, Prague. Pistoia K. Slides, PDF.Open Equal weightsWeighted by IRT12345A score that detects change Case studyA questionnaire score that could not detect changeItem response theory gave a questionnaire a score that detects change.Open Week 1Week 2Week 3Own weekly patternDaily steps Case studyStep count data that showed no improvementDaily steps, compared with each patient's own weekly pattern.Open Fifteen patients, one chart each Case studyPsychometric evidence from 15 patientsPsychometric evidence for a rare disease measure, one patient at a time.Open ArticleWhat to Expect When You Weren't Expecting (to Need a COA Strategy)Piper FromyOpen ArticleWhat Difference Does a Day Make?Piper FromyOpen

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